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Rob Burrow: ‘MND isn’t the worst thing in the world. What a lucky life I’ve had.’

Amelia Hopkinson

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Photo: Instagram @mndassoc

Consistency.

Just one word.

That is where it all started.  

While presenting an award, Leeds Rhinos rugby player, Rob Burrow, could not say the word consistency. He did not drink alcohol and he certainly was not on any drugs like people assumed. This was his first sign.  

Weeks passed and Rob felt increasingly fatigued. He was often slurring his speech and his arms had started twitching.  

In his autobiography, he writes about the embarrassment he felt when he could not pronounce the word solicitor, while he was on the phone to his solicitor. It was at this point that Rob and his family started to think his symptoms were caused by more than just stress. 

Headingly Stadium, the home of Leeds Rhinos, can hold 20,000 people – and statistically this means that 66 of those will be diagnosed with MND at some point in their life. For many people, the term MND does not mean anything to them, it may be assumed to be another slang term used by the new generation. However, for over 1,100 people every year, it becomes their new reality.  

I’m not trying to portray myself as a hero.

Rob Burrow

This is the case for Rob Burrow, who on December 12, 2019, was diagnosed with Motor Neurone Disease. He was only 37 years old.

MND gradually prevents messages from our motor neurones reaching muscles throughout the body, resulting in muscles weakening, stiffening, and eventually wasting away. Currently there is no cure, only a drug called Riluzole which slightly slows down the progression of the disease and can increase life expectancy by two to three months. 

The Motor Neuron Disease Association is the only national charity in the UK which is solely based on beating MND. For over 40 years the charity has been researching the disease and searching for a cure. MND is treatable so the charity therefore believes that there must be a cure. Alongside this work, they have 22 care networks across the country which offer support and care for sufferers of MND, and their families. 

Rob Burrow is a huge name in rugby league, which is remarkable given that he spent a career playing against giants that towered over his 5ft 5ins frame. Ever since Rob began playing rugby, he defied all the odds, something which he continues to do in his battle with MND.

“Since his diagnosis with MND, Rob Burrow’s commitment to rugby league has been mirrored by his commitment to raising awareness of this brutal disease,” a spokesperson for the MND Association said.

He has inspired so many people by sharing his own journey.

MND Association

After his diagnosis, Rob was given one or two years to live.  

Over two years later he attended Windsor Castle where he received an MBE for his services to rugby and creating awareness of motor neurone disease during the Covid-19 pandemic.  

By choosing to publicly share his journey, Rob has created huge awareness of the disease as well as the MND Association. Even though the pandemic was a huge obstacle, Rob and his family and friends have been doing whatever they can to raise money for MND and create awareness.  

In October 2020, “Rob Burrow: My Year with MND” aired on the BBC. The documentary was an opportunity for Rob and his family to spread awareness of MND and the heart-breaking effects which follow a diagnosis. The documentary showed how rapidly Rob has – and continues to – deteriorate.  

Photo: Instagram @mndassoc

In January 2020, just a month after his diagnosis, Rob played in a charity rugby match against Bradford Bulls which raised over £70,000 in donations. Leeds Rhinos were victorious and on this day, so was Rob’s fight with MND. Instead of giving up and submitting to this awful disease, Rob has chosen to fight it with everything he has.  

There is no expectation that Rob will miraculously recover. He cannot. There is no cure. Playing rugby, putting his shoes on, or changing the channel on the television. These are easy, daily tasks for us but for those living with MND, they are huge victories over the disease. Rob is trying to do whatever he can, while he still can.  

The love and support which has been shown to Rob since his diagnosis has truly been remarkable, but his former Leeds Rinos teammate and friend Kevin Sinfield has gone above and beyond to raise money in Rob’s name. His first challenge in 2020 saw him run seven marathons in seven days and he raised a staggering £2,243,375.

No regrets, I wouldn’t change a thing.

Rob Burrow

In 2021, he decided to go the extra mile and run 101 miles in just 24 hours, which saw him raise a further £1,300,000 in honour of Rob and all the other families affected by MND.  

Photo: Instagram @mndassoc

Alongside raising money for the MND association, Rob and his family have decided to go one step further and raise funds towards the building of a bespoke MND centre in Leeds. At the new MND centre all a patients’ needs will be catered for in one building. Patients will have access to support which is uniquely tailored to their needs from speech therapy to physiotherapy, depending on their type of MND. The main aim for the centre is that it will help give those living with MND the best quality of life as possible. Overall, £5m is needed for the Rob Burrow Centre for MND to be built.  

One of the most recent fundraising events was the Burrow Strictly Ball. The star-studded event held at Headingly Stadium took place on the 19th of March, with the hopes of raising £100,000 towards the Rob Burrow Centre for MND appeal.  

The ball had everyone in attendance from politicians to athletes to presenters. Just like Strictly Come Dancing, celebrities were partnered up and given a dance to learn and perform on the night.  

Many celebrities supported the event all in their own unique ways. Comedian John Richardson, BBC Breakfast presenter Dan Walker and fellow Strictly contestant and actor, Kelvin Fletcher were all adjudicators on the night. Strictly Come Dancing professionals, Nadiya Bychkova, Kai Warrington, and Katya Jones attended and showed huge support of the event across all their social media platforms. BBC Look North’s Tanya Arnold and Danika Priim from the Leeds Rhinos ladies’ team were both comperes for the night and Charles Hanson from BBC’s Bargain Hunt hosted a live auction at the event.  

The celebrities who volunteered to dance at the event had a wide range of backgrounds. Athletes such as Leeds Rhinos legend Barrie McDermott, English football coach and former player Brian Deane and the ‘Welsh wizard’ himself Iestyn Harris. Dr Amir Khan, NHS doctor, author, and columnist danced at the event as well as Shadow Home Secretary, Yvette Cooper, alongside her husband Ed Balls. Emmerdale actors, Adele Silva, best known for playing Kelly Windsor and Natalie Anderson, also known as Alicia Metcalfe, as well as Line of Duty star Nigel Boyle danced at the event. BBC presenters Luxmy Gopal and Sally Nugent were also in attendance.  

The amount of people who attended, participated and supported this event just goes to show how inspiring Rob Burrow is and how successfully he has created awareness of Motor Neurone Disease.

The MND Association said: “He has inspired so many people by sharing his own journey just as he did on the pitch. The awareness, funds and support that have been raised as a result will continue to resonate through the MND community and the work that the MND association does. We are incredibly proud to have Rob as a patron of the MND Association and incredibly grateful for his ongoing support.”  

Rob is still fighting, even though he has lost the ability to walk and talk, it is not stopping him from being there for his three young children, Macy, Maya, and Jackson.

When asked if he had any regrets while writing his autobiography, Rob said: “I hit a rough patch, that’s all. It hasn’t been ideal, I’ll give you that.

“But MND isn’t the worst thing in the world. I’m not trying to portray myself as a hero, but I’m glad I got it rather than my beautiful wife and kids. And what a lucky life I’ve had overall. No regrets, I wouldn’t change a thing.” 

Rob has always said since being diagnosed with MND: “There’s too many reasons to live.” 


Since this article was written over £5m has been raised to build the Rob Burrow Centre for Motor Neurone Disease and final designs have just been published.

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Greens become third-largest political party in the UK

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Membership of the Green Party has overtaken the Conservatives, making them the third largest party in the country.

The party now has more than 126,000 members, an 80% increase since Zack Polanski was elected as leader last month. 

After his appearance on BBC One’s Laura Kuenssberg show, Polanski said the Green Party saw 1,000 new members join in just over two hours. 

The party’s leader insists that “British politics is changing” and previous “support for old-style parties” is “shrinking”.

The Green Party is gradually climbing the polls in voting intention, but Reform UK close to the top with over 260,000 members.

The last official figures published in August 2025 shows that Farage’s party need only 70,000 more members to match with Labour. 

While countering Reform, the Green Party reportedly now have more than double the members of the Liberal Democrats. 

Polanski declares that more people in the country are “choosing a new kind of politics” where they’re offered “a bold, hopeful vision of prosperity, equality and unity”. 

A rise in support for the Greens suggests many are moving away from a “broken” two party system, according to Polanski.

Their increase in numbers “reflects growing public frustration with the political status quo”. 

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Residents fear for safety over Winchester’s nighttime lighting policies

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Many Winchester residents have spoken out, saying they feel unsafe at night.

Some have feared for their safety, claiming they cannot even see where “curbs start and finish” alongside Romsey Road.

While those who must travel home late due to unsocial working hours have expressed anxiety about walking home at night.


Earlier this year, Korine Bishop, chief inspector from Hampshire Constabulary, announced there was a 3.66% rise in night crime in Winchester.
 

Hampshire County Council took an approach in 2019, to tackle saving money by switching off street lights between 1am – 4am.

Yet earlier this year, they extended the switch-off by an hour each way.
 
Local councillor David Harrison said: “The evidence that more crime takes place because of a lack of lighting isn’t really there.”

As winter approaches, the growing unease among residents raises urgent questions about community safety and the effectiveness of current council lighting policies.

Despite this, approaches have been taken to ensure nighttime safety for younger people in Winchester.

Jessica Dunipace, from the Students’ Union welfare team, has urged students to “travel home with somebody and catch a taxi when possible” regardless of gender, race, or age.

Ms Dunipace also said that “despite Winchester being one of the safest cities, there are still incidents that can happen”.

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The dramatic spike in Russian aggression and provocation within Europe, and why the Baltics matter

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Anti-Ukraine War Protest Outside of The Russian Embassy, Tallinn, Estonia. (By Maksim Romashkin)

Drones causing the closure of airports in Poland, and Russian fighter jets taunting the West with provocative flyovers.

These are only two examples of how Russia is signalling its potential military push further into the European continent.

While Ukraine is Russia’s main focus, many people are not aware that the North Atlantic Treaty Organisation (NATO) provides Ukraine with the vast majority of its long-range missile systems, as well as things such as armoured battle tanks and anti-surface-to-air missiles. Recently, NATO has allowed for Ukraine to use ATAKMS, as well as Javelin missiles, against military targets within Russian territory.

Due to this, it is clear why Russian President Vladimir Putin is under the strong belief that Russia and the NATO alliance are at war with each other, and can easily sell this idea to his population through state-funded propaganda.

Russia’s Recent Airspace Violations:
While NATO is surgical and cautious when it comes to potentially poking the Russian bear, the same cannot be said about Russia itself. In September 2025 alone, Russia has violated the airspace of five NATO member states.

Poland saw over a dozen drones enter its airspace on the 9th of September, with them being flown over Ukraine and Belarus.

Airports within the cities of Krakow and Warsaw were closed, as fighter jets scrambled to intercept the drones. On the 13th, a Russian drone entered Romanian airspace, just over the Ukrainian border, where jets were also deployed to track and monitor its movement, before it crossed back over into Ukraine.

As well as these blatant airspace violations, between the 22nd and 28th of September of this year, numerous drones were seen hovering around airports and military assets within Denmark and Norway.

These sightings severely disrupted air travel within the region, with the major cities of Copenhagen and Oslo shutting down their airports for multiple hours due to safety concerns.

Arguably, the most concerning airspace violation within recent years came on the 19th of September, when the Baltic nation of Estonia reported that three Russian MIG-31 fighter jets entered their airspace over the Gulf of Finland, a short distance away from the capital of Tallinn.

While Russia violating the airspace of any nation is seen, and most certainly should be seen, as a major security threat, when nations such as Estonia are targeted, the threat of further military aggression or even invasion from the Kremlin is significantly heightened.

Due to Estonia being less than a hundred times smaller than Russia, and having a completely incomparable amount of military strength, with Russia having around one million active military personnel, and two million reservs, and little Estonia only having around 230,000 reserves at absolute most, this fear is even more exacerbated, as the lives of all Estonian citizens would be in immediate danger during the first few hours and days of an invasion scenario.

The Significance of the Baltics:
Countries such as Estonia are especially vulnerable to Russian influence and acts of sabotage, primarily due to their high Russian diaspora, and their shared history as part of the soviet system.

Latvia and Lithuania suffer similarly tense relations with their neighbour; however, Estonia is home to the city of Narva in its North-East, which sits on the west bank of the Narva River, with Russia watching like a hawk on the other side.

The significance of Narva lies within its demographics, with around 88% of the city’s inhabitants being Russian, with most of them even holding Russian passports. Additionally, due to Russia’s pariah status around the world, there have been numerous documented cases of the Russian population within Estonia being discriminated against, with the Russian language being heavily discouraged, and most of the poverty within the country being seen within Russian-speaking households.

Due to the issues faced by native Russians within the Baltic States, it is easy for military planners within NATO to fear that the Kremlin will attempt the utilise the same excuse that it implemented when undertaking its full-scale invasion of Ukraine in February of 2022, which was that the Ukrainian government were undertaking a genocide against the Russian minority within the nation.

This argument was, of course, not true; however, it is not out of the question that Russia wouldn’t one day attempt to accuse a nation like Estonia of such crimes, propping up either a limited or full-scale invasion shortly after.

Thankfully, of course, Estonia and the other Baltic States are safely nestled under the NATO nuclear umbrella; however, many governments around the world are speculating if the member states within the alliance will risk a third world war and the potential for nuclear annihilation over a minuscule country like Estonia.

If Russia were to seize the city of Narva, for example, the government in Tallinn may very well deem it necessary to enact Article 5, deeming the attack as an attack on all other NATO members.

The question is, however, would the United States, or any other powerful member, risk the lives of their populations for a small city in Estonia with only 53,000 people?

Due to this extremely crucial question, many NATO members are spending a colossal sum of money preparing for Russia to eventually test the waters of the alliance, by potentially dipping its toes into a vulnerable state such as Estonia.
Countries such as Poland, and the three Baltic States of Estonia, Latvia, and Lithuania are some of the highest percentage of GDP spenders within the alliance, with the highest of these being Estonia, which has committed to reserving 5.4% of its entire GDP, of around 42 billion USD, solely for defence spending.

While not as high as Estonia’s spending, Latvia and Lithuania have committed to spending 3.15% and 3.9% of their GDPs on defence, respectively.

While the likelihood of war rearing its ugly head to ravage the European continent once again is not guaranteed, the concept of it being above zero makes it critical for European and North American governments within the NATO alliance to start preparing and arming for the worst, as if the worst may come, being unprepared is simply not an option.

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